Advocacy Tools
Children’s hospitals may access resources like toolkits, talking points, legislative materials and more to build and strengthen their issue advocacy capacity.
Everything You Need to Know About the ACE Kids Act
The ACE Kids Act was signed into law as part of a package of Medicaid bills, the Medicaid Services Investment and Accountability Act of 2019 (H.R. 1839).
CHA Applauds Actions Taken to Increase Access to Sickle Cell Disease Therapies
The Centers for Medicare and Medicaid Services (CMS) and the gene therapy manufacturers announce new agreement.
CHA Commends Bipartisan Congenital Heart Futures Reauthorization Act
The act reauthorizes federal data collection, research, and awareness efforts on the diagnosis and treatment of congenital heart defects.
Children's Hospital Association's 2024 End of Year Letter to Congress
The letter highlights CHA's end of year priorities and asks Congress to take action to sustain children’s hospitals’ ability to provide care to our nation’s children.
CHA Responds to Revised OPTN Bylaws and Policies
CHA’s comments highlight the need for increased pediatric representation on the OPTN Board of Directors and throughout the OPTN Modernization process.
CHA Submits Letter to HHS on Baxter Closure
The letter thanks HHS for their response to supply shortages caused by Hurricane Helene and urges continued support for pediatric needs during ongoing IV solution shortages.
CHA Submits Comments on Interoperability Rule
CHA’s response addresses pediatric-specific considerations for strengthening an interoperable health information exchange.
CHA Submits Comments for 2025 OPPS and PFS Proposed Rules
CHA highlighted pediatric considerations in response to certain provisions within the proposed rules, which could have a downstream impact on Medicaid.
CHA Submits Statement for the Record for Energy and Commerce OPTN Hearing
CHA’s statement highlights the importance of examining the impact of “Securing the U.S. Organ Procurement and Transplantation Network Act,” has had on pediatric health care.
CHA Submits Comments and Joins Coalition Letter on NIH Reform Framework
CHA’s response addresses the inclusion of pediatric patients and research within NIH institutes and centers and strengthening the pediatric research workforce pipeline.
